top of page

UPDATE: Blessings from Blair Honors Blair’s First Birthday with UCLA NICU Donation, Supported by Mirum Pharmaceuticals

August 19, 2025
Camarillo, CA

 

Blessings from Blair, a nonprofit dedicated to supporting families enduring the NICU experience, is proud to announce a heartfelt donation to the UCLA Neonatal Intensive Care Unit ("NICU") in honor of Blair’s first birthday.

 

This initiative is made possible from the generosity of our supporters, including Mirum Pharmaceuticals, which remains committed to improving outcomes for families affected by Smith-Lemli-Opitz syndrome and remains committed to advancing rare disease research.

 

On September 2, 2025, Blessings from Blair will deliver care packages and essential items to families currently in the UCLA NICU—marking nearly one year since Blair’s own NICU journey.

 

"We're looking forward to offering our care and support for families in the UCLA NICU on September 2, 2025,” said Jacob Tutor, Chief Financial Officer and Cofounder of Blessings from Blair.

 

“It's hard to believe it’s been nearly one year since we were in their shoes.  It’s with heavy hearts that we provide NICU families our love and support. Our progress in 2025 remains strong, and we’re proud to be closing in on our delivery and fundraising goals as the year draws to a close."

 

The public is invited to join Blessings from Blair in celebrating Blair’s birthday by donating items through the organization’s Amazon wishlist, sharing its social media with friends, families, or local businesses, or contributing financially to help support future NICU families.

 

For media inquiries or to get involved, contact Jacob Tutor at Jacob@blessingsfromblair.org or message @blessingsfromblair on Instagram.

 

About Blessings from Blair
Blessings from Blair is a 501(c)(3) nonprofit organization founded in honor of Blair Frances Tutor’s memory by providing care packages to NICU families.  Through volunteer efforts and community support, the organization delivers essential items to families facing prolonged hospital stays.  Learn more at www.blessingsfromblair.org.

About Mirum Pharmaceuticals
Mirum Pharmaceuticals is a biopharmaceutical company dedicated to transforming the lives of patients with rare diseases through innovative therapies and community support.  Learn more at www.mirumpharma.com.

bottom of page